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Why we don’t use the ARFID diagnosis

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Written by Dr. Kay Toomey

ARFID is a diagnosis that the American Psychiatric Association created in 2013 to replace the old DSM IV-TR diagnosis referred to as Feeding Disorder of Infancy and Early Childhood. A number of studies indicated that the prevalence of the DSM IV-TR’s Feeding Disorder diagnosis was only about 3-12% of the population of children with feeding challenges (Burklow et.al., 1998; Rommel et.al., 2003; Field et.al., 2003; Williams et.al., 2009). This low prevalence was due in part to a number of exclusions in the Feeding Disorder of Infancy and Early Childhood diagnosis. To receive this diagnosis, a child needed to be under 6 years of age, they had to have weight loss or failure to gain weight for at least one month, and they could not have a medical or mental health disorder that would account for the child’s feeding problem. It is also very important to note that the DSM IV-TR diagnosis was classified under the developmental disorders section of the DSM (Diagnostics and Statistics Manual). We will come back to this point in just a minute.

Due to low usage, the ARFID diagnosis was created to capture a larger group of children. The age criteria was eliminated, as was the requirement for weight loss or failure to gain weight. Now, any child who is not meeting their nutrition or energy needs can qualify for ARFID as long as one of 4 issues is present: significant nutritional deficiency; dependence on enteral feeding or oral supplements; marked psychosocial issues; or weight loss/growth faltering. In addition, if there is a medical or mental health issue present, the child’s feeding difficulty had to be worse than the average feeding problem seen in children with that same medical or mental health issue. The other major change that was made was that this diagnosis was moved out of the Developmental Disorders of Childhood section of the DSM and moved into the Psychiatric Disorders Diagnoses section of the DSM; specifically into the Eating Disorders section.

There are a number of very significant issues with the diagnostic criteria of ARFID and the move of this diagnosis into the Eating Disorders section of the DSM.

#1 – The shift out of developmental disorders into psychiatric disorders has now psychopathologized feeding difficulties from being a medical/developmental/skill acquisition set of problem to being a mental health disorder (Kirkey, S., 2012. Picky eaters could join ranks of mentally ill. Canada National Post. 1-6.). The world’s leading feeding experts disagree with the American Psychiatric Association’s classification of feeding problems as mental health disturbances. This disagreement was part of the impetus for these experts, with Feeding Matters’s help, to create the new Pediatric Feeding Disorder diagnosis. Dr. Toomey says that it is important for professionals to understand “Feeding problems are not all in children’s heads. It’s all in their bodies”. When children don’t eat, it is because something about their body is not working correctly (Dr. Kay Toomey).

#2 – Because ARFID now is considered an Eating Disorder, any professional who is not an expert in Eating Disorders should NOT be assigning an ARFID diagnosis. For a professional to assign an ARFID diagnosis, they should be a physician, psychiatrist, psychiatric nurse, psychologist or another mental health professional who is allowed to give psychiatric diagnoses. In addition, these professionals should be trained enough to also be comfortable assigning an Anorexia Nervosa diagnosis or Bulimia Nervosa diagnosis in order to be qualified to give an ARFID diagnosis. Many professionals do not realize that they now need a different set of qualifications in order to ethically be able to give an ARFID diagnosis and to not step outside of their scope of practice. Additionally, this move of feeding problems into Eating Disorders excludes most Rehabilitation Professionals (such as Speech Pathologists) from giving this diagnosis to their patients.

#3 – The ARFID diagnosis is now so inclusive that almost any child who is power struggling with their parents about food could qualify for this mental health disorder. This overly broad diagnosis occurs, in part, because there is no clear definition of what is “marked interference with psychosocial functioning”. Does this mean the parent doesn’t like how their child eats or what their child eats? Does this mean the child’s eating is bothersome enough that the parent is asking for help from a professional? Does this mean that the child doesn’t like eating in the school cafeteria, but can do it? Or, does this mean that the child is eating by themselves in their bedroom and that they eat none of the same foods as their family members? Having a diagnosis that is this broad is not helpful to us as professionals or parents, in understanding what is happening with our child/clients/patients.

#4 – The last issue I have with the ARFID diagnosis is with the exclusionary criteria because a) most professionals assigning ARFID are not considering the exclusions; b) there is disagreement in the field whether feeding skills deficits should be part of the exclusionary criteria (Dr. Toomey believes they should be); and c) because to be diagnosed with ARFID in the presence of another medical or mental health issue, your feeding problem has to be worse than the average child with that same exact medical or mental health problem. This latter piece of the exclusionary criteria is the biggest problem with ARFID because we do not have in the field enough data to say what the AVERAGE feeding problem is for children with medical and mental health diagnoses. For example, we cannot say what an average feeding problem is for a child with Cystic Fibrosis or Down Syndrome or Gastroesophageal Reflux is. We don’t know what the average feeding problem is with a child with oral-motor problems or Sensory Processing Disorder or an anxiety disorder. While we have some good ideas about what types of feeding problems children with these issues have, we do not have the data to say what the AVERAGE feeding issue is clearly enough to then say that X child’s feeding issues are bad enough to qualify them for ARFID.

We hope you find this blog helpful to your understanding of the complexity of diagnosing feeding challenges and why we don’t use the ARFID diagnosis. Instead, we use the Pediatric Feeding Disorder diagnosis proposed by Goday et.al. in 2019 and encourage professionals to use this diagnosis as well.

 

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